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Showing posts with label C? Say WHAT?. Show all posts
Showing posts with label C? Say WHAT?. Show all posts

Saturday, January 16, 2016

Alan Rickman & Donald Trump

I was thinking about David Bowie and Alan Rickman dying from cancer. Which is sad. And then there is all this hoopla about Donald Trump. Which is stupid.

We talk about politicians etc. And I am grateful I can vote. I'm glad I live in a country where we can discuss these things. But I have to say, when people get all honked off about this and that. Frankly, it gets kind of silly.

I just think about what I would consider to be "real" stuff. Health stuff. Too many people getting or dying of cancer. Too many people being overweight and having diabetes etc. Prejudice. This overwhelming sense of so many people being proverbially pissed off all the time.

I think we need to take care of ourselves and our bodies and spirits and not get our knickers in such a twist over what I consider to be inane stuff like politics.

Get out of the house. Go see a play. Go see Star Wars. Go hear some live music. If you can't get out, watch something funny on TV, a movie or youtube. Try and move. Get off your arse. And most of all......

Try to be grateful because life is short!

Tuesday, July 28, 2015

I'm Honored


I'm not often at a loss for words.  But getting this in the mail today drove me to tears.  I am honored beyond comprehension.
An old friend rode 150 miles. in my name.  I can't believe it.
I will treasure that he thought of me.  To think I'd have to get damn cancer to have someone ride for me.
I'm a survivor.  Bet your ass I am. The last two bouts of Dragon's Blood took it out of me in the most embarrassing way, but having someone think of me makes all the shit worth it.  
Thank you, Reid, for thinking of me.

Wednesday, April 8, 2015

My Hair (The Saga Grows. Everywhere.)

Apres Le C. April 8, 2015. Four months after the last of the Dragon's Blood.

(Demi-amusing)

My dear friend (who makes magic with my nails and other beauty parts), gave me some shampoo samples a while back to help thicken one's hair.  Mine, to be specific.

Apparently, everything from the neck DOWN sure as heck got the memo.  Not to be too gauche, (oh, what the hell, let's be gauche) but watching one's legs become Neaandrathalic before one's eyes is a little slice of Otherworld-liness.

My razor whimpered.

My head hair, on the other hand looks like a bizarre combination of a cartoon runner with "s'ploding" (exploding) follicles, AstroBoy and a 3-D topographical color map of the Andes Mountains compete with white tops.

Monday, March 2, 2015

As The Hair Grows

As my hair grows in, we can't decide if I look like a salt-n-pepper Ed Grimley,


 a Rhodesian Ridgeback



or a Bedlington Terrier.



Wow.  Two dog breeds and a weirdo in high pants.  Far out!

Wednesday, December 17, 2014

Last Dragon's Blood Aftermath

I haven't blogged about the "c" thing for a while, but oh, this last one....after I was off the predisone....kicked my ass.  I wrote on Facebook.....

Dec. 16, 2014

"For the last few days, I've been wracking my brain trying to think of someone I personally know and would wish this c crap on.....and......nope, I don't think I dislike/hate anyone THAT much. 

This too shall pass. But for now, this last dragon's blood....it's kicking my arse! Literally and figuratively. Being trapped in the house is not fun. 


I've also been trying to figure out what the "lesson" is with this whole mess. 


The upside is people have been amazing and if I ask for help, they seem more than willing to help. So grateful for that."


A friend, Peg, wrote this......and I wanted to hang on to it......

Why does there have to be a lesson.....something to learn? Some go so far as to say God wants your attention....or here's another lie....God must be punishing you with sickness....Oh how great religion can be....so comforting....yes that is my sarcastic voice speaking. I believe life is life....just exactly that....life. God is in every moment we breathe in and out....He is in every moment, hear this....in all our moments His life lives in us and His life will continue on in us when we no longer take in breath. So.....in your quiet time of reflection....just let Him tell YOU all about it. He will ya know! Love and Hugs..


Thursday, October 2, 2014

Make-Up This Early?

5:30 AM this morning.  I am in the cat room-slash-"boudoir" and the Spousal Unit pokes his head in (pre-coffee).
The only light is coming from the make-up mirror.
S.U.: What are you doing?
Me: Experimenting
S.U.: What?
Me: (Louder) Experimenting.
S.U.: With what??
Me: Makeup!!
S.U. (slightly baffled) OK, then.....
I have two excuses: Prednisone. And newer makeup.

Wednesday, September 10, 2014

Androgynous Mia Rides The Short Bus

Got my first strange reaction to having no hair.
"Are you a man?"
"Ah, nope."
Bless her heart, I think she was a bit slow

Tuesday, September 9, 2014

Second Chemo Done!!

Music therapy was interesting while getting the second dose of dragon's blood.....the therapist recorded it!  FAR OUT! Silly stuff....If anyone want to hear 12 minutes of silliness, let me know.  PM me. The therapist's name was Samuel; he had a big old pony tail!  He had a really cool set-up with a MacBook, iPad, guitar, headphones, mics etc. All on a little trolley!  Brilliant idea!



The nutritionist hopped by and gave me a book of recipes: Eating Well.  That was nice.  the part of the book that cracked me up with "High Calorie-High Protein."  How about LOW calorie, HIGH Protein.

I'm still hoping for Art Therapy and Pet Therapy. Next time?

Wasn't prepared for yesterday "happy accident."  It's been a long time since I've needed to buy "feminine hygiene" stuff.  (OH, did I gross out the guys?  Did I?  Yippee!)  I peed my pants yesterday and today.  FK!  So upsetting.  I have a bladder infection so yet another addition to the drug collection.

Came home and drank some green dragon fuel (smoothie with kale, spinach and fruits....)! I do a smoothie every day.  Now if I could stop eating like a lumberjack at night.  Sigh....

Two down, four to go.  No radiation, thank you very much!  Dragon's blood is ok, dragon fire, nah-uh!

Thursday, September 4, 2014

The Crickets' Song

I sit on my porch and listen to the crickets singing their late summer song.  the night gives me a chill and a thrill as I gaze up at the night clouds, grey against an ageless blue sky.  I feel small and yet infinite in my connection.  I am not alone.  Spirit is always with me.  Love is all around me. I am beyond grateful even in the midst of stress and fear.

"Out of this situation only Good will come.  This is easily resolved for the highest good of all concerned.  All is well and I am safe." (Louise Hay).

The moments of panic and worry about the show, my body and my strength will pass.  Spirit runs through me and will sing through me. The dragon's blood will only strengthen my soul in the long run.  I may be in a crucible at times but gold comes from such things. I have to hold on to it.  The right people are all around me, Spirit brings me such gifts beyond human comprehension. I just have to keep on walking.

And the crickets sing on in the deepening night.

Monday, September 1, 2014

Snort Fest

Having a giggle with friend Rob the day I discovered that yes, my hair was starting to fall out! There was much snorting as well....

I snort when I laugh!

Man, am I fkg fat!  Bleech!

Fuzz Butt, Fat Butt

The preemptive hair cut.....a few weeks ago.
I couldn't imagine being in a better place (Hungarian Festival) or with better friends (Bini and Rob) to discover that yes, my hair was starting to come out today! Ironically, it was the gray hairs that were coming like gang busters! It was kind of nuts!!!!
Hair before the cut....

It starting falling out today (the hair) so The Spousal Unit shaved it off. I knew those dog clippers would coming in handy, LOL! I know the SU did want to shave it but when your public hairs start falling out too...man, it's MORE than time!  I can only imagine how frustrating and frightening it must be for him. 

My friend Kim shaved the nape of her name for me and her friend Linda who has breast cancer. Kind of overwhelming to have a friend will to do that for me.Christy Duran Warthling was right; I'll kind of rock this new "do." Now if I could just drop 40 pounds.....LMAO! I feel like Tubby the Tuba was a fuzz bucket head. Henna cap, here I come!

Thursday, August 21, 2014

Wigs & Browns....Meh....

Well, Wigs and Brows "class" was a lovely idea BUT not all that and bag of chips.  Did meet a very nice lady, Sheila, an esthetician by trade at the "class."  She was very cool!  Otherwise, it was basically an advertisement to Wigs and Things, which is a very well stocked store and the people are very nice there.  But talk about sticker shock!!!????  A low-end wig for $179??  I am pretty sure my insurance covers one hairpiece but I could probably get about 3-4 wigs for that price.

Yeeee-ouch!

The higher-end micro-filament wigs (which are very nice) were (gasp) $379 and up. I discovered that light brown-red and reds look good on me, not the darker browns.  I think I could rock Reba Red!!

I did learn some rocking ways to tie a scarf thought.

I'm looking forward to the ACS "Look Good Feel Better" class. Hoping that's a bit more comprehensive and robust.  This one was disappointing.

Saturday, August 9, 2014

Pre-Emptive Hair Strike

I hate cell phone selfies, just saying.....no matter what you do, you look like a friggin' chipmunk!


After talking to Linda Panda (my Utah Support System), and thinking about my hair....I decided to do a pre-emptive Hair Strike and get my hair cut short. I don't like myself with short hair.  Frankly I think it makes me face look chubby and harsh and you see (da-da-da-DUM!) The Jowls.  (Boo!)

If I keep my hair, it grows quickly.  If I lose it....it won't be quite as shocking! Even though I'm ok with the hair thing (not the eyebrows or eyelashes thing; that's a bit freaky, to be honest), I feel a bit more in control.  If you know what I mean.  I like me in longer hair but this will do.

Friday, August 8, 2014

Untethered

No land speed records. Average 8mph. 
No long distance.1.75 miles. 
No hills conquered. 
And it made me a bit tired so I'll rest now. 
But oh it felt nice to be untethered for a brief time.

Monday, August 4, 2014

Too Darn Hot

Holy Hot Flashes Batman, the refrigerator looks REALLY awesome at times.....

"Oh, if you were just big enough for a lounge chair, a bar, a TV set and a computer..."

I had such a bad one earlier that one of my band-aids from the port placement flew off my neck!  I mean melted like a Dali painting and THEN flew in desperation!

I look at that box of HRT patches with tearful longing, "I miss you guys, you kept my body temp normal and toned down my moodiness."

Can't decide which hurts more: my butt (from bone marrow), my chest top (from the port thingie) or where the ENT tried to extract stuff from my neck.

And nobody told me I'd be wearing a bra 24/7.  Hey, port radiology peeps, nobody told me I'd need that kind of support....

Sunday, August 3, 2014

I Am


 I am female, a goddess, a woman, a wife, a singer, an actress, a photographer, a writer, a cyclist, a dog and cat mom, a friend, a sister, an aunt (and great aunt)....I am all this and more.  These are the things that define me.  I must not allow that crappy C thing to define me or steal what helps me feel whole and part of the Universe and Life.  It's just something I have to get through, to drive through, thrive through. I want to be a cancer "Thriver" not just a survivor. 

I have moments where I completely break down and feel immobilized, terrified and devastatingly fatalistic. I have other moments where the whole thing seems surreal, bizarre and twisted. I have moments of laughter, which are the best times of all.  I'm so grateful for my friends and family who encourage my absurd, witty side.

I'm so glad for the rehearsals for my show too even though it's a lot to deal with.  I am grateful for the silliness of my co-stars.

I needed today to connect with my art and nature and I thank my darling Spousal Unit for getting my carcass out of the house.

Saturday, August 2, 2014

Port (And Not The Wine) Whine

Thank you to my sister and Kim!  If I ever need to storm the beaches of Normandy with spies disguised as The Entertainment, you're the ticket!  A two pronged approach to "git 'er done!"  Margit kept folks on their toes and Kim kept me laughing. I've been thrown out of worse places than Akron City Hospital.

The Grinch went with me into surgery, LOL!

Took forever to get me processed for the surgery. (The Female Sibling Unit was NOT amused).  I did make one of the intake nurses laugh to the point where she dropped her pen.  I guess it was the "squeaking  while walking" reference.

I had a few melt-downs especially after they'd taken me back, given me the Dreaded Gown and left me there for what seemed like an eternity.  I surreptitiously texted my Battle Team and they were back with me in nothing flat.
The nurses who did the intake were very nice, esp. Sandy.  She answered a ton of questions and was patient and kind.  We only had one potential duke-it-up when she wanted to put the IV in my hand or wrist.  Oh, hell no!

My Battle Team escorted me to the pre-surgery area.  This was dismal little room about the size of the stateroom in A NIGHT AT THE OPERA where I half expected to see a bare light bulb dangling from the ceiling and a weasly little guy with glasses, a trenchcoat and a fedora smoking cheap Turkish cigarettes.

"Vee haf vays of making you talk..." he says with a sadistic giggle.

My sister rolls her eyes and looks around this cubicle.  "Oh. (Pause) Cheery."

 Nurse Marcia (yes,  of course, we did the "Marcia, Marcia, Marcia" reference) talked with  me about The Procedure.  Why in the hell do they call it that?  You're cutting me open and sticking plastic shit into my body.  It's surgery.  Dr. Rosenblum came in and we talked about where to put the damn thing.  98% of the time it's on the right hand side.  But, nooooo.  I have to be different. Big Surprise.  Not.

Nurse Marcia comes back into the room with some guy (Jeff the Radiologist) with his protective gear on.

"My God, you look like an extra from Star Trek!"

"They say black makes me look slimmer."  (OK, this guy is going to be all right.)  They explain a few more things and my Battle Team kisses me goodbye.  Into the surgery room I go.  They start to transfer me over to the table.

"You folks know you're putting the port in on the left hand side, right?"   Pause.

"Oh!  That's right!" A somewhat frantic scramble ensues as they switch everything around.  Grinch, mind you, has been with me the whole time.  They put him on a shelf to observe.  The usual fussing begins (mind you, I'm still wide awake and bushy tailed).  I gaze up at the ceiling looking at the ugly tiles (why can't they put stars or something pretty up there?) and say, "Man, this is real. This sucks," and start tearing up.   I think it might have been the oxygen port and the mask (on me). The action stops.  I mean stops. The prep nurse (can't remember her name) puts her gloved hand on mind and just holds it.

"I bet it's really overwhelming. It's OK, we're here for you. Take your time."

"We all have breakdowns. I had one the other day, here at work.  It's fine," say Jeff (the radiologist).

 I finally suck it up, wipe my eyes and she starts the prep.  Cleaning and draping, telling me what she's doing the whole time.  I'm a bit more chatty now; we're talking about different things.  I tell them I'm a singer, photographer, cyclist (always good conversation starters.  "I guess I might not be doing that metric century this year...damn!").

"Would singing help you?"  Interesting question. Fascinating, actually.

"Yeah, it would, I think."  So I sing "As Time Goes By." I would guess that would get my breathing more concentrated and controlled.

"I need a port and a doctor!" says the prep nurse.

For some reason this strikes me as rather amusing, "Yeah, that might be helpful."  Dr. Rosenblum comes in, gloved hands upright.  Now, again, why this suddenly strikes me as eerily akin to Groucho Marx's Dr. Hackenbush is beyond me.  Marcia starts administering the drug cocktail.  I don't doze off.  Oh, no.  We all actually have a surprisingly coherent conversation about singing and exactly what IS a metric century anyway?  I can feel the shots they give me.  I can feel him stitching me up, which is surreal. The doc finishes, says something nice which I can't remember and leaves me with Marcia and Jeff (the radiologist).   I look at them and say, "I'm not exactly a church-going gal or even a Christian but I have a really strong feeling I'd like to ask you to pray for me, Jeff."

"Do you want to do that now?"

"Yeah, I kinda do." So while I'm laying on the bed, the Grinch next to me, Jeff, Marcia and I join hands and he says a simple prayer.  They roll me out and Kim comes down to meet me and take me home.

I feel this lump in my chest. It's all bandaged up and such.  I'm sore.  My arse is still sore.  I had nightmares this morning.  But I'm home and I'm safe and I would like to believe it going to be just fine. And I'll do my damn show and at some point that damn metric century.


Tuesday, July 29, 2014

Bone Marrow Aftermath.

Well, the silly bone marrow do-dah went better than I expected.  I made the staff laugh.  This is a good thing.  (I think.....)

"It's probably a good thing you're not giving me Demerol.  I'd be singing."

"That's OK, you sing if you want to."

 And yes, I sang.  Of course.

A lot of pressure.  It's not something I'd want to do again but it wasn't too terribly bad.  Now that the lidocaine has worn off, it hurts.  I did get to see the little piece of bone they took out. Nurse Nancy was pleased they got such a good sample.  (Groovy....)

The best part was afterwards at my friends' Al and Terry's house where I had homemade omelettes.  When I went to the ladies' room, my dressing came off (which was to be expected).  With my drawers down in back, I waddled into their kitchen and said, "Which one of your guys can put a band-aid on my arse."  There was a pregnant pause and Al went to fetch a band aid.

His retort was, "It's been a loooooong time since I've seen a woman's arse." LOL!

Wisdom From Ann Lamott vis-a-vis Bone Marrow Crap

Thank you Joni Liebel for sharing  Anne Lamott....these lines rang well with me even though she's (Anne) about five steps ahead of me.

"I have long since weeded out people who might respond to my condition by saying cheerfully, "God's got a perfect plan." Really? Thank you! How fun. 

"There is no one left in my circle who would dare say, brightly, "Let Go and Let God," because they know I would come after them with a fork."

Let today's games begin!!  I will feel a sense of major accomplishment if I don't find myself running down the hall in a backless hospital gown as they try to do whatever they're going to do with my bone marrow today while I reenact "The Scream" in real life.

I can do this.  It's just a big prick (or a poke) and a big sting and a fair amount of pressure.  I've dated those before.

Monday, July 28, 2014

First Day of Testing.....The Ugga-Mugga-Walla-Walla Heart Do-Dad

I have a heart.  I've seen it!  LOL!  It looked like stars, like a galaxy through a big telescope.  They took blood from me, put some tin in it, and stuck it back with radioactive shit so I would be all glowy!  The tech, Tim, was nice and kind of funny. I think he read me pretty well because he showed me one of the pictures. I came home, ate two sandwiches and SLEPT.

I've been thirsty as hell.

However.....on a totally downer note.....

My regular doctor has dropped the ball. The ball that is me.  I asked for a lidocaine cream script and help getting a temp handicapped placard for the car.  I really need one for whoever's car is nice enough to take me places.

Nixed on both. "You have to get that from whoever is doing your treatments."  Really?  REALLY? Seriously?  WTF?